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dc.contributor.authorKvarme, Lisbeth Gravdal
dc.contributor.authorAlbertini Früh, Elena
dc.contributor.authorBrekke, Idunn
dc.contributor.authorGardsjord, Ragnhild
dc.contributor.authorHalvorsrud, Liv
dc.contributor.authorLidén, Hilde
dc.date.accessioned2017-11-15T12:08:46Z
dc.date.available2017-11-15T12:08:46Z
dc.date.created2015-09-11T14:38:39Z
dc.date.issued2016
dc.identifier.citationJournal of Clinical Nursing. 2016, 25 (3-4), 362-371.
dc.identifier.issn0962-1067
dc.identifier.urihttp://hdl.handle.net/11250/2466431
dc.description.abstractAims and objectives: To provide knowledge about how immigrant parents of children with complex health needs manage their family lives and how this affects their own health and quality of life. Background: Caregivers of children with complex health needs have additional risk for general health problems and mental health problems and immigrant parents may be more vulnerable to mental distress and failing health and quality of life. Results: Immigrant parents of children with complex health needs experience their own health and quality of life challenges. They described the burden of dealing with their child's needs and special care, which affects their sleep and physical and mental health. Single mothers are particularly vulnerable. Conclusion: Parents reported positive and negative effects of their caregiving experience that may affect their health and quality of life. Mothers were the primary caregivers and reported more health problems than did fathers. The lack of respite care, social networks and support impacted maternal health. Immigrant parents struggle to access resources for their child with complex health needs. Relevance to clinical practice: Hospital nurses, schools and community health care can play a valuable role in supporting the parents of children with complex health needs. It is important that parents are informed about their rights and receive a coordinator and interdisciplinary group to ensure that their needs are met with assistance and respite care. That maternal health was worse in this sample implies that health care professionals should pay more attention to reducing stress among these caregivers.
dc.language.isoeng
dc.titleOn duty all the time: Health and quality of life among immigrant parents caring for a child with complex health needs
dc.typePeer reviewed
dc.typeJournal article
dc.description.versionpublishedVersion
dc.description.versionacceptedVersion
dc.source.pagenumber362-371
dc.source.volume25
dc.source.journalJournal of Clinical Nursing
dc.source.issue3-4
dc.identifier.doi10.1111/jocn.13056
dc.identifier.cristin1263596
dc.relation.projectNorges forskningsråd: 227022
cristin.unitcode7437,0,0,0
cristin.unitnameInstitutt for samfunnsforskning
cristin.ispublishedtrue
cristin.fulltextoriginal
cristin.fulltextpostprint
cristin.qualitycode2


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